For Immediate Release From Lupus Foundation of America!
What is lupus?
Lupus is a chronic (long-term) disease that can cause inflammation and pain in any part of your body. It’s an autoimmune disease, which means that your immune system — the body system that usually fights infections — attacks healthy tissue instead.
Lupus most commonly affects your:
Skin
Joints
Internal organs, like your kidneys and heart
Because lupus affects many parts of the body, it can cause a lot of different symptoms.
Learn more about lupus signs and symptoms:
Common signs and symptoms of lupus
The most common lupus symptoms (which are the same for men and women) are:
Extreme fatigue (feeling tired all the time)
Pain or swelling in the joints
Swelling in the hands, feet, or around the eyes
Headaches
Low fevers
Sensitivity to sunlight or fluorescent light
Chest pain when breathing deeply
Many people with lupus also have problems that affect their skin and hair, like:
A butterfly-shaped rash on the cheeks and nose
Hair loss
Sores in the mouth or nose
Fingers and toes turning white or blue and feeling numb when a person is cold or stressed (Raynaud’s Disease)
Lupus symptoms may come and go — and they can change over time.
If I have these symptoms, does that mean I have lupus?
Not necessarily. Lupus shares a lot of symptoms with other diseases, like arthritis and diabetes.
So if you have these common lupus symptoms, it’s important to talk to your doctor and find out whether you have lupus or a different health problem. That way, you can get the treatment you need.
Learn more HERE!:
https://www.lupus.org/resources/common-sym... ********
Centro Nacional de Recursos sobre el Lupus
El Centro Nacional de Recursos sobre el Lupus presenta información actualizada sobre todo lo que quiere saber acerca del lupus.
Información adaptada sólo para sus necesidades
Encuentre recursos para personas con lupus, cuidadores, padres o profesionales
¿Qué es el lupus?
El lupus es una enfermedad crónica (a largo plazo) que puede causar inflamación y dolor en cualquier parte de su cuerpo. Es una enfermedad autoinmune, lo que significa que su sistema inmunológico, el sistema del cuerpo que generalmente lucha contra las infecciones, ataca el tejido sano.
El lupus afecta con mayor frecuencia a:
la piel
las articulaciones
los órganos internos, como los riñones y el corazón
Debido a que el lupus afecta muchas partes del cuerpo, puede causar muchos síntomas diferentes.
Obtenga más información sobre los signos y síntomas del lupus
Learn more HERE!:
https://www.lupus.org/es/resources/que-es-... ********
Programs and Services
We're here for you. We support everyone affected by lupus. Whether you are living with lupus, a parent, spouse or loved one - we're your partner on this journey.
The Lupus Foundation of America provides education and support services to people affected by lupus. We collaborate with experts to provide clear, easy-to-use information, programs and resources to help you navigate every step of your journey with lupus.
Created With You – And For You
Our programs and services are personalized for who you are and what you need.
LupusConnect
LupusConnect™ is an online lupus community where individuals with lupus and their loved ones can engage with others like them to share experiences, find emotional support and discuss practical insights for coping with the daily challenges of the disease. It’s an easy-to-use, online platform that encourages its community members to ask questions, reply to posts and read about others' experiences in a safe and comforting community.
We've heard from many people impacted by lupus that they'd like a place to connect online with others like them.
There is no charge to join LupusConnect, and once you sign-up to be a member, you will experience a positive and welcoming environment with 24/7 access to the community.
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LupusConnect
LupusConnect™ es una comunidad de lupus en línea donde las personas con lupus y sus seres queridos pueden interactuar con otras personas similares para compartir experiencias, encontrar apoyo emocional y discutir ideas prácticas para hacer frente a los desafíos diarios de la enfermedad. Es una plataforma en línea fácil de usar que alienta a los miembros de su comunidad a hacer preguntas, responder a publicaciones y leer sobre las experiencias de otros en una comunidad segura y reconfortante.
Hemos escuchado de muchas personas afectadas por el lupus que les gustaría un lugar para conectarse en línea con otras personas como ellos.
No hay cargo para unirse a LupusConnect, y una vez que se registre para ser miembro, experimentará un ambiente positivo y acogedor con acceso a la comunidad las 24 horas del día, los 7 días de la semana.
Discussions cover a wide array of lupus-related topics, and include posts by members offering practical tips and resources that they have found useful for daily living with lupus. Community members have the ability to personalize their profile, follow specific posts of interest, engage in group discussions or direct messaging, and can add others as friends. Members also have full control of their personal information, and must adhere to a strict privacy policy and terms of use.
Learn more HERE!:
https://www.lupus.org/resources/lupusconne... ********
SELF: Strategies to Embrace Living with Lupus Fearlessly
Be Your Best Self
No matter how long you’ve been living with lupus, SELF has the tips and tools to help you better manage your disease.
What is SELF?
The SELF app (Strategies to Embrace Living with Lupus Fearlessly) is our free self-care program for people with lupus. SELF was designed to help people with lupus live their best lives.
SELF can be your virtual coach to help you:
manage lupus symptoms
manage stress
manage medications
work with your health care team.
SELF is unique.
It’s convenient and customized to your needs--offering easy-to-use tools, trackers, skill-building activities, support, and reminders.
Who is SELF for? SELF is for:
People with lupus newly diagnosed who need help getting started managing this complex disease;
People with lupus who want to feel more in control of their disease;
People with lupus who feel they manage their disease well but perhaps want a little help dealing with some of the ups and downs of lupus;
SELF is available for people who are 18 years and older residing in the United States;
Learn more HERE!:
https://www.lupus.org/es/node/2368 ********
Advocate with Us. Raise your voice to fight lupus.
We are the leader in stimulating federal support for lupus, generating more than $684 million for lupus research and education in the past five years. Every day we fight to ensure the government is responsive to the needs of the 1.5 million Americans living with lupus, and your voice is one of the most powerful tools we have.
2024 National Lupus Advocacy Summit
The nation's largest lupus advocacy event is back - the 2024 National Lupus Advocacy Summit will be held in Washington, DC from May 19-21! Hundreds of lupus advocates will come together to learn about the latest in lupus research, connect with other advocates, and advocate for policies to improve the lives of all people affected by lupus.
Learn more HERE!:
https://www.lupus.org/advocate/advocate-wi...
Posted By: agnes levine
Saturday, January 20th 2024 at 2:57PM
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